NIH Blueprint for Neuroscience Research Accepting Applications
The NIH has a new program entitled the NIH Blueprint for Neuroscience Research. This program is designed to turn discoveries into new drugs for nervous system diseases by providing a “virtual pharma” with resources, expertise and funding to advance promising compounds from chemical optimization through Phase 1 clinical testing. The network is structured so that [...]
CPIRF announces new CEO
The Cerebral Palsy International Research Foundation (CPIRF) Board of Directors is pleased to welcome and announce the appointment of Mr. Glenn R. Tringali as Chief Executive Officer effective April 13, 2010. Since 1975, Mr. Tringali has spent his entire professional career in the nonprofit community, having held senior administrative and fund development positions with some [...]
2010 Goldenson Awardees
Dr. John Hsu is the 2010 winner of the Weinstein-Goldenson Medical Science Award. This award is presented annually to a clinician-scientist for outstanding contributions in medical research which enhance the lives of individuals with cerebral palsy and their families. Dr. Hsu is an Emeritus Clinical Professor in the Department of Orthopedics, at the University of California, [...]
Themes in Neurorehabiliation: Cerebral Palsy Across the Lifespan
CPIRF is proud to co-sponsor a two-day workshop entitled ‘Themes in Neurorehabilitation: CP Across the Lifespan’ at the Kennedy Krieger Institute in Baltimore, MD on November 5 and 6th 2010. Dr. Mindy Aisen, CPIRF’s Medical Director, will be giving the keynote address. Come learn about the best-evidence practices for the treatment of the medical, rehabilitative [...]
AACPDM 64th Annual Meeting
26 August 2010
CPIRF to Participate: AACPDM American academy for cerebral Palsy and developmental medicine 64th Annual Meeting September 22-25, 2010 Washington, DC USA Shared Learning: Global Perspective The AACPDM’s 64th Annual Meeting is designed to provide targeted opportunities for dissemination of information in the basic sciences, prevention, diagnosis, treatment, and technical advances as applied to persons with cerebral palsy and developmental disorders. The [...]
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This is the era of “patient centered care” and this is your opportunity to give our government feedback about what works and what you need.
19 August 2010
ADD funds projects of national significance (PNS) designed to foster systems change in meeting the needs of people with developmental disabilities and their families. ADD is asking people to complete a short on-line survey about the types of programs and projects that would be most helpful to people and their families. The survey [...]
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FDA Approves Drug for Chronic Drooling in Children
29 July 2010
The U.S. Food and Drug Administration today approved Cuvposa (glycopyrrolate) Oral Solution to treat chronic severe drooling caused by neurologic disorders in children ages 3 years to 16 years. Drooling is normal in infants. But a significant proportion of the developmentally disabled population experiences drooling caused primarily by neuromuscular dysfunction that makes it hard to swallow. [...]
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Contribution of inflammation to Perinatal Brain Damage: Is there a causal role?
28 June 2010
July 2010 Fact Sheet Drs. Sylvie Girard and Guillaume Sébire, recently published a study in the April 2010 issue of the Journal of Immunology examining the role of maternal bacterial infection and inflammation occurring at the end of gestation. Although it is recognized as an independent risk factor for neuro-developmental disorders such as cerebral palsy, mental [...]
Posted in Fact Sheets, PreventionComments (0)
The Cerebral Palsy Group 2010 West Coast Conference
16 June 2010
A Conference for Adults with Cerebral Palsy The CP conferences bring together adults with CP as well as members of the medical profession, social workers and educators who focus on the issues confronting adults with CP. For many adults with CP, as well parents and caregivers, the conferences are the only source of information about living [...]
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Organizational Announcement
15 June 2010
Ms. Jacqueline Carmosino has been hired as Manager of Administration for CPIRF, having joined CPIRF on June 1, 2010. Jackie has extensive experience in both the non profit and private sectors, having served in executive administrative capacities for the National Alliance for Autism Research (NAAR) and Autism Speaks, Inc. for the past 8 years [...]
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Injury to the Preterm Brain and Cerebral Palsy – Part 2: Molecular Mechanisms and Animal Models of Injury to the Preterm Brain
20 May 2010
May 2010 Fact Sheet Part One can be found by clicking here… Leading neuroscientists, clinicians, neurobiologists, and pediatric neurologists came together for a symposium entitled “Injury to the Preterm Brain and Cerebral Palsy” in conjunction with the 37th Annual Meeting of the Child Neurology Society on November 5th, 2008. This symposium was supported [...]
Posted in CauseComments (0)
Transformational Technologies Workshop – Part 2!
18 May 2010
CPIRF and Rancho Los Amigos Rehabilitation Rancho Los Amigos National Rehabilitation Center will hold a focused retreat/workshop examining the role of commercially available and emerging technologies for improving motor performance, psycho-social function, cognitive/behavioral function, environmental control and means for extending treatment into the community setting. The neurological conditions to be discussed will be Cerebral Palsy, [...]
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CPIRF SAC member honored by the American Academy of Audiology
07 May 2010
Dr. Stephen Fausti receives Jerger Career Award for Auditory Research The American Academy of Audiology honored Dr. Stephen Fausti with the Jerger Career Award for his distinguished career in audiology research during their conference in San Diego on April 15. Dr. Fausti is the Director of the Portland VA Medical Center’s (VAMC) National Center for Auditory [...]
Posted in Foundation NewsComments (0)
Embryonic Stem Cell Therapy for the Treatment of Acute Spinal Cord Injury
12 April 2010
April 2010 Fact Sheet Geron, a pharmaceutical company based in California, announced in January 2009 that they had received clearance from the FDA to begin the first human clinical trial of embryonic stem-cell based therapy in the treatment of acute spinal cord injury. This was planned to be a Phase 1 clinical trial to assess safety [...]
Posted in Diagnosis and TreatmentComments (4)
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- Dr. Hermano Igo Krebs
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- Critique of Alternative Therapies for Children with Developmental Disabilities
- Embryonic Stem Cell Therapy for the Treatment of Acute Spinal Cord Injury
- Diane Damiano, PT, PhD
- Nathan Baker is proof positive that kids with disabilities can compete in sports.
- Cell – Based Therapies for the Treatment of Cerebral Palsy
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- Themes in Neurorehabiliation: Cerebral Palsy Across the Lifespan
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- Is Dance an Effective Therapy for Cerebral Palsy?
- Research Funding for Cerebral Palsy Prevention and Treatment in FY09 and FY10
- CPIRF announces new funding for a project to study racial disparities in the occurrence of Cerebral Palsy.
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